Communication through knocking is Now a Preferred Method for My Guardian Angel
In a heartwarming development, Juliana, a young girl living with Angelman Syndrome, has started using a new method to communicate her needs and feelings. Juliana, who is nonverbal, communicates using basic sign language and an iPad device referred to as her talker.
Previously, Juliana would often express her feelings through screaming, especially in the mornings. This was a common way for her to convey frustration, upset, or simply to indicate that she was awake. However, around last summer, a significant change occurred in Juliana's morning routine. Instead of screaming, she began knocking on her bed. This new behaviour, a welcome change, has replaced her previous habit of screaming to announce that she's awake.
Juliana's knocking is not a constant behaviour. It occurs randomly at times, but it has become a new way for her to communicate. When she knocks, she is responded to with "Who's there?" This simple exchange has opened up a new avenue for Juliana to express herself.
Researchers are currently studying the potential benefits of seizure control on the development of children with Angelman Syndrome. While the reasons for the change in Juliana's communication methods are not specified, it is hoped that she will soon use her talker to express more complex emotions like sadness or frustration.
It's important to note that this article does not provide medical advice, diagnosis, or treatment. The evolution of Juliana's communication methods, from knocking to potentially using her talker, is an ongoing journey.
One of the defining characteristics of Angelman Syndrome is the infectious laughter that children like Juliana exhibit. The reasons for this laughter and the happy demeanours associated with the syndrome are not fully understood.
Juliana uses expressions like "buh, buh" for bubbles and "buh-bye" for goodbye. Her laughter, coupled with these simple signs, makes for a delightful interaction. The hope is that with continued progress, Juliana will be able to communicate even more effectively, enriching her life and the lives of those around her.
This article aims to spark discussion about issues pertaining to Angelman Syndrome. The journey of children like Juliana serves as a reminder of the incredible potential for growth and development, even in the face of challenges.
