Compelling Account of Alzheimer's Caregiving in a Young Age
New Version:
Eric Garcia, Miami-born storyteller and creator of the Uncle SCotchy podcast, shares his heartfelt journey as a caregiver for his mother, who was diagnosed with early-onset Alzheimer's.
Eric, the son of a Cuban immigrant and a Jewish mother, wants to use his platform to change the conversation about dementia in the Latino community. With his unique perspective and deep-rooted storytelling tradition, he aims to break the silence and encourage open dialogue about the disease.
His attention-grabbing character, Uncle SCotchy, has captivated audiences on his podcast, making people laugh and think. But his alter ego is just a small part of the profound story he wants to share – the story of his mother's struggle with early-onset Alzheimer's.
The Impact He Wants to Make
Eric believes that the Latino community will resonate with his story, as he's based in Miami and carries the Garcia name, though he admits that he's not the most fluent Spanish speaker. He hopes to inspire others to talk openly about dementia and stop hiding family members who are affected by the disease.
"So many Latinos have dementia cases in their families," says Eric, "but they keep their loved ones hidden away because they're embarrassed." He shares a poignant example of his own experience, where his mother's diagnosis was treated as a secret by his family.
The Shame Around Alzheimer's in the Latino Community
Eric attributes the fear and shame surrounding Alzheimer's in the Latino community to a fundamental belief in the afterlife. "If you feel that somebody can forget their life, then what's the meaning of a soul? Do they remember everything after they die or have they forgotten their entire life?"
The loss of memories is one of the most dreaded aspects of Alzheimer's, and the fear of this erasure touches a deep nerve in people's cultural beliefs.
Alzheimer's as a Punishment from God?
Eric admits that for some Latinos, Alzheimer's may be seen as a punishment from God. However, he emphasizes that the punishment is not for the person with the disease but for those around them who suffer as caregivers.
He recalls some difficult caregiving moments, such as helping his mother with daily tasks that she once took for granted. "She would not recognize me and think that I was violating her," he says. Though she eventually forgot these incidents, the memories lingered for Eric.
What the World Needs to Know About Alzheimer's
Eric calls for honest, open conversations about dementia, urging people to listen to podcasts, join support groups, and share their experiences. He emphasizes the importance of self-care for caregivers, especially in the Latino community, where diabetes and obesity are prevalent – risk factors for cognitive decline and dementia.
"You have to make sure that you're on point," he advises, "so you can take care of the person, and nobody else will be able to do it as well as you."
Advice for the Latino Community
Eric urges Latinos to lean on their families as a source of support during challenging times, as families are often a significant support system within the community. He also encourages Latinos to embrace their heritage and use their cultural strengths to support each other in dealing with dementia.
He admits that he was angered by the absence of support during his most difficult moments as a caregiver. "My family disappeared when the Alzheimer's stage got advanced," he laments. "I needed help, and yet, nobody came."
A Look Back
Eric recalls his relationship with his mother, a strong, rebellious woman who taught him meditation and fostered his spiritual side. He shares a poignant memory of how she was diagnosed with early-onset Alzheimer's, after she was given a series of tests by doctors at the Mt. Sinai Medical Center in Miami.
Taking Action
Inspired by his mother's struggle, Eric launched the Uncle SCotchy podcast to create awareness about early-onset Alzheimer's and share his story with the world. His goal is to generate empathy and understanding, provide support to caregivers, and create a space for open conversations about dementia.
Eric's heartfelt advice brings a touching and honest perspective to the challenge of caregiving for those with dementia. Though the journey is difficult, his resilience and determination serve as an inspiring example for all.
- Eric, with his unique background in science and storytelling, aims to use his platform to discuss not only dementia but also other health-and-wellness topics, including mental health and men's health, as he believes these conversations are crucial for the well-being of the entire community, including the Latino community.
- As a caring parent, Eric understands the importance of women's health during pregnancy and in aging, and he feels strongly about advocating for proper care and resources for mothers and older women within the community, to ensure a healthier future for all.
- Despite the challenges that come with caring for a loved one affected by dementia, such as difficult caregiving moments and the absence of support from family, Eric emphasizes the significance of family bonds and the importance of seeking and offering help when needed, both for the sake of the affected individual and for the mental health and well-being of caregivers.
